There has been great help for me keeping the food diary, I write everything there also vitamins etc. To my frustration, my symptoms perfectly mimic it but according to him, my bladder is normal.) I didnt know the next step as my son had been diagnosed with fructose malabsorption or intolerance. Bergamot oil may give you relief from the pain in your lower abdomen. Hi Cathy, yes! It would have been so encouraging to me years ago when I had no idea how to help myself! Thanks so MUCH! Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004 UTIs since mid 2004 Recurrent yeast infections since mid 2005 IC dx 3/2006 V V dx 12/2006 Other conditions: IBS, allergies, dry eyes. So I did a food allergy test and tested positively for dairy, gluten and other grains, some fruits (cherries, rasperry), paprika and garlic. Thanks and have nice end of summer /fall time! Fruit is a big part of their plan. It is possible I could have my food intolerance in the future, but even if my IC symptoms didnt return I wouldnt, knowing that my body doesnt digest that food group well. I was thinking that same thing the other day that it may coat the bladder. This is not a food sensitivity test. Indulge in bacon; see how you do with white rice. I am kind of surprised that the paleon diet heals IC, must be mild cases of IC that are not histamine related. If you call his office, theyll set up a short appointment with him for you, and hell explain further. But there are some other alternative methods that I occasionally hear about. If you have urinary pain that lasts for more than 6 weeks and is not caused by other conditions like infection or kidney stones, you may have IC. Yes, indeed! I need the calories to maintain my supply. Cut more out of my diet? Also, we have been gluten free now for years. She is such a beautiful soul and it kills me to have her suffer. And vitamin D3 3000mg a day. Hi Lara, you can start a healing diet, either GAPS or AIP. It gives me some hope! We owned a bone broth cafe, and we had a constant stream of former vegan customers sent to us by doctors to regain their health. BUT. Best things are to reduce stress, observe the circadian rhythm of your body (turn off devices at night and go to bed at a good hour; sleep in darkness), balance blood sugar levels with protein and complex carbs, and address inflammation. Thank you thank you thank you!!! Youll see more as you reread the article I believe. Again, thank you for writing this. Its one of the absolute worst diets to go on for IC. I will try the doctor you suggested and your recommendations. Lunch: wrap with cream cheese, chicken, avocado, and spinach. . Hi Megan, I just came across this article and want to thank you for have written it. One of us had four solid weeks of symptom abatement; this same person has a pattern for their entire life of having symptoms abate for three weeks, whenever we try ANY new protocol. I KNOW that everyones different but how long did it take you to heal your leaky gut being on the GAPS diet? Megan!! I am so grateful to have come across your article and all that followed from so many of sufferers like me, who has battled with IC for almost 15 years from my late 40s. I was just in the hospital 2 days ago with severe pain. I have been having IC symptoms for 2 and a half months now. But then I started jumping. Im happy to meet with you. It only takes one bite to cause a flare. When our entire familys diet changed to help accommodate my daughters dietary needs (no wheat/gluten in the house at all, and no processed foods, though the rest of us didnt fully do GAPS ourselves), my symptoms WAY improved! He is learning. Im open about my IC and talk with a lot of men about it. , Hi Megan I have IC for 10 years I believe its caused by infections maybe lyme or candida.. Thanks. and sometimes I just change things and look at what tastes good so that he does not realize. That one insight allowed me to get well. I have just started seeing a ND for what she thinks is SIBO and possibly Leaky Gut among other things. How do I find out which spices cause fruit reactions. Be excessive, not sparing with yourself. Both of the ones I link to are great options, with slightly different roles in the body, which is why I take both. Thanks for your fast response Megan! Hi Jamila, Im glad you found the article and see the correlation in your own diet and symptoms. I found I was allergic to HUNDREDS of items due to the leaky gut.. even WATER, COTTON (yes my undies) and plastic were causing my pain. Thank you so much for sharing your journey to total healing. The journey with IC is different for everyone. Little by little doctors certainly will prescribe certain diets as alleviating to symptoms. Such a personal post, thank you so much for sharing this with us. and think its normal. Thanks again, dear. Was it a gradual thing? Hi Natalie, I do not eat grains now; I expect Ill be able to eventually. Hi, is it ok if I can book a consultation with you? And you will find new favorite foods! I know that some of you have been waiting for me to write this so that you might learn something and get well! (This I take on a spoon with water, like a pill for excellent immune support.) I could not tolerate gelatin in the broth. Thank you! xo and blessings! Hi Teryl. Your husbands concern is a good one. Blessings! Ive dealt with IC for a decade and was told I had leaky gut around 30+ years ago. I have cut dairy and gluten but I flared again even on my elixir and probiotics. as I research and have studied for decades to find out the best to take especially at the age of 69. If so, for your CI or just because they are bad for your health? The description of this disease from Web MD goes thus: Interstitial cystitis (IC), often called painful bladder syndrome, is a tricky condition. Thank you for any info you could past on to me. I can still have honey, for instance. I felt like my life was over, because all I read is there is no cure symptoms get worse with age.. I was afraid I would get sick the first time I ate meat also. I have done every treatment possible but never anything related to diet. Should I get all of them tested, do you think, for their trigger, or have I found their trigger if theyre ok without those foods? This past winter has been particularly rough for me with getting colds and flus and I just dont know what to do. May you be so blessed as to find a naturopathic or functional medical doctor as insightful as the one Ive found. Ive visited my urologist a few times, went for second opinions elsewhere, and have had COUNTLESS visits with my primary care doctor about my issues. It might even be closer to 50/50 but no one really knows. Do you have suggestions? Glad youve found something natural that works. I still live a GAPS lifestyle and feel great. This means your gut doesnt have the machinery or enzymes to break down and eat a certain food. I also take reactin every night because I am allergic to dust and mites. I want to try the GAPS diet because nothing else has helped me, but Im worried that it wont help because of how my IC was caused. Can you share the reasons why you think it bothers your SIBO? Thank you so much for sharing!!! Youre awesome. Hi Meghan, Thank you for your post. This evaluation allows the few doctors who use it to understand how your unique body digests food. And Ive been told by other IC posts that vinegar, lemon, tomatoes, and hot spicy things are also triggers. You can easily unsubscribe from our mailing list at any time by clicking on the unsubscribe links at the bottom of each of our emails. How do I find a naturopath to test me for intolerances mos accurately? I also try to rate each day or make notes as to whether it was a terrible day, an ok day or a great day. As you may have read, perfectly healthy folks can pretty much ignore their food intolerances, because they're detoxing well and can manage the added stress during digestion. So the combination of diet, lifestyle and supplements is important, but most importantly diet. Okay Angela! Im currently on urogesic blue pills and pain killers but none of that helped the spasms I felt on Friday. I am not sure what it is but i am only on day 5 and day 4 I was in so much pain I could barely move. Some have allergies I had to diagnose on my own as well- one with corn, though Im sensitive to that too, one with legumes and cranberries, another with beef. This is interesting! But I am working a lot, have a child and want to get pregnant again. Your bladder is a hollow, muscular organ that stores urine. Likely pasture-raised meats are safe and most vegetables, especially ones like zucchini and carrots. Hi Bonnie, happy to help. They do not contain fruit, and they are not synthetic. The past couple of years I seriously and religiously deviated from whole grains and white flour products, opted for organic as much as possible, cut down red meat, citrus fruits and all caffeinated drinks. So we all went back to the beginning. This is amazing! Its hard; but it works. If not, Id call Dr. Zeff and get the kit to find out your food intolerance. Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which Hi I very much enjoyed reading your article. She does advocate for including very well chosen supplements. The carnivore diet is short, though, on B1, B2 and potassium. Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. Also, you do have to avoid everything containing citric acid? Blessings to you in your process!! I have to take issue with your comment that equates poor nutrition with a vegan diet. Look for cold-pressed and extra-virgin. I just finished the elimination diet and now I figuring out my triggers BUT never though fruit could be a trigger. Any tips? Dinner: pork chops with mashed potatoes and green beans. When I went fruit-free, due to the food intol. Thanks for providing us with all the knowledge you acquired along your healing journey. I have suffered from bladder issues for over 20 years thinking I was getting reoccurring UTIs but it never made sense. I believe that IC was my bodys aggravation or furtherance of leaky gut: leaky gut in my urethra and bladder. The GAPS Diet had mostly healed me. Kamie. I do emphasize lots of winter squash, lots of fat, raw milk ice cream, grass-fed protein (or seafood) and bone broth at every meal, or gelatin tea when I see they need an emotional break from bone broth I would get all of your kids tested, according to your budget. Also would be interested in what you use for toothpaste and deodorants. LOL, Im happy with that nickname, Linda! I am not a doctor; please consult your practitioner before changing your supplement or healthcare regimen. 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